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<P>Hayley, my 7 year old CFer, has been waking up at night complaining of her stomach hurting.  She will often say her stomach hurts, but usually just to get out of eating the rest of her dinner or something else that she does not want to do.  Two nights of the last two weeks she has woken up in...

Also posted in Family Section. My daughter Hayley, just turned 7 and is a double delta F508. She has been hospitalized 16 times over her short seven years including her diagnosis. She just always seems to get sick, especially in fall and winter and usually requires inpatient hospitalizations...

My daughter Hayley, just turned 7 and is a double delta F508. She has been hospitalized 16 times over her short seven years including her diagnosis. She just always seems to get sick, especially in fall and winter and usually requires inpatient hospitalizations 3-4 times per year with IV...

I posted earlier a question about Tamiflu and I appreciate all the responses. I did call and got our CF doctor's on-call doctor, a doctor we know and trust and he heads the PICU at our hospital. He called in the tamiflu and I gave her one dose already. We are having a very hard time getting...

I posted earlier a question about Tamiflu and I appreciate all the responses. I did call and got our CF doctor's on-call doctor, a doctor we know and trust and he heads the PICU at our hospital. He called in the tamiflu and I gave her one dose already. We are having a very hard time getting...

Hayley age, 5, came home from school yesterday feeling bad and has ben running a fever ever since, even with Tylenol and Motrin every four hours alternating. I am giong to call the doctor and hope he is on call this weekend and ask for Tami Flu, just curious if anyone has used it recently. Did...

Hayley age, 5, came home from school yesterday feeling bad and has ben running a fever ever since, even with Tylenol and Motrin every four hours alternating. I am giong to call the doctor and hope he is on call this weekend and ask for Tami Flu, just curious if anyone has used it recently. Did...

Hayley's culture came back with regular staph and cupriavidus pauculus. Even the CF nurse had never seen it and I cannot find any information on the internet that I can understand about this bacteria. Has anyone else ever cultured this? We are still waiting for the doctor to get back to the CF...

Hayley's culture came back with regular staph and cupriavidus pauculus. Even the CF nurse had never seen it and I cannot find any information on the internet that I can understand about this bacteria. Has anyone else ever cultured this? We are still waiting for the doctor to get back to the...

So we have insurance through my job, which is an HSA plan. I put money in my HSA account and obviously that is pre-tax, so I can't claim any of that, but we have to pay out $3,000 family deductible before insuance pays anything. Then they pay 80% until the out of pocket maximum of $7,000. So...

I am just curious how many of your kids take Xopenex and how many take Albuterol? Have you had any problems with Albuterol? Hayley was diagnosed at 3 months old and has always been on Xopenex. Recently our prescription coverage has changed and I was thinking of asking the doctor to change us...

My 4 year old daughter, Hayley, just cultured this in her throat culture for the first time and they are going to treat it oral Augmentin. She has never cultured this particular bacteria before and when I searched it on the internet, it is a group of strep that causes infections in the vaginal...

My 4 year old daughter, Hayley, just cultured this in her throat culture for the first time and they are going to treat it oral Augmentin. She has never cultured this particular bacteria before and when I searched it on the internet, it is a group of strep that causes infections in the vaginal...

We are getting ready to head to Disney in a few weeks and I will need to take Hayley's Pulmozyme and Tobi on the plane and keep them cold. I am not sure what I am allowed to use? Regular ice, or an ice pack, what will the airline allow with a small cooler to keep them cold? Also what if any...

Just wondering if anyone is doing Zithromax (azithromycin) as a maintenance med. My daughter, Hayley, who is 4 just started it this week. She has had three rounds of IV antis in the last six months, had a bronch which did not really culture anything, chest CT, sinus CT, and a few other tests...

JUst wanted to let you all know that another CF mom I know from another board has written and finally gotten published a book about CF aimed at very young children with CF. Here is a copy of her post on another board: Yay! It's been a very long and involved process but I am very, very happy...

My daughter Hayley will be getting a port placed this afternoon. She has just been having a really rough time over the last six months and we have done IV's several times, this will just make things easier on her and after reading a lot of the posts hear for all of you, we have decided that the...

My daughter Hayley will be getting a port placed this afternoon. She has just been having a really rough time over the last six months and we have done IV's several times, this will just make things easier on her and after reading a lot of the posts hear for all of you, we have decided that the...

Hi there, I don't post a lot, but read here daily. I have a question about the order of nebulized medications, I did a quick search but couldn't find any old posts. So Hayley does Xopenex three times per day, usually with her vest and she then does her Pulmozyme 1 time per day, we do this at...

We currently have Pro Neb Ultra II the we got about 4 months ago and already it is not working properly! UGH! I know lots of people have had problems with this compressor. What other compressors do you guys like or use that can be used with TOBI and Pulmozyme? Thanks!!!