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Hi. My daughter has started gymnastics recently and she has a mickey button. The first few weeks her site was irritated but seems to be better now. My husband and I worry about her doing gymnastics and having the mickey, especially the bars. Does anyone have any experience with this? Thank you!

I saw someone on here used Lisa Green's resounces/letters for teachers when starting school and I found the letter and plan on using it too. I'm wondering, do most or all parents on here also request their children using their own markers, pencils, scissors, etc.? I'd never thought about that...

We're thinking of relocating in a couple of years and like the Montrose, CO area. I know there is a CF doc that goes to Grand Junction 2x a month for CF Clinic. Does anyone on here live around there? If so, what do you do for care between clinic visits or if you have to be hospitalized? It's...

I'm wondering if anyone gives their children melatonin and what dosage do you give them and do they take it nightly? Thanks!

Hi everyone! We live in Alaska and would at some point like to relocate to Minnesota. We have insurance through my husbands work and also have TEFRA (a children's medicare waiver program) for her secondary. I hope I'm not being to upfront by asking, but we wonder how others, even w/ good...

I just wanted someone elses opinion on a birthday party. My CF daughter was invited to a party that's going to be at the indoor play area at carl's jr. in a couple of weeks. I usually try to avoid going there b/c it's so gross and right now it's flu season and so far so good w/ her not getting...

Hi everyone! I'm curious if anyone here goes to the CF Clinic in Spokane and what it's like there? How are the docs w/ kids? Are they very proactive in their care? Thanks in Advance, Misty

I have a question about waterless hand sanitizer. My CF daughter is 4 and in preschool and they regularly use hand sanitizer and my 6 yr. old non-CF daughter is in kindergarten, they don't use it at her school at all, only soap and water. We use it at home a lot. A while back when my 6 yr...

Just wondering what type/brand of vitamins you have your CF child/ren taking? We've been using the L'il Critters Gummy Vites.

I'm just wondering if you'd mind sharing how you do laundry and are you real anal about killing germs? I didn't know this but my parents shared this w/ me recently when they we're visiting. I've just always washed all of my clothes together in cold water, except for whites and towels I wash in...

I'm thinking of starting Morgan on Culturelle. Does anyone here use it? Can you tell a difference and in what ways? I noticed there is Culturelle and a Culturelle of Kids, the kids also has Insulin. Which one do you use? Thanks.

I was wondering if someone could answer this question for me. First off, my daughter Morgan (3 1/2 yrs.) has not been gaining weight in a while, in fact she's lost about 1/2 lb. or so over the last 3 months and 3 three months prior between clinics I think she only gained 1/2 lb. She's had no...

I'm wondering if anyone uses these products to clean their homes? Do you feel like they clean good enough without using other products? I've heard great things about them and so many other products have such bad fumes and think those products are bad for those without CF to be smelling and...

Hi all ~ I was wondering if it matters or not if you boil the nebs in a pan you use to cook food in or is better to have a separate pan? Thanks ~Misty~

I took my daughter to clinic last night and overall she's doing pretty well. She gained 3 lbs. since January clinic, YEAH!!! Her stomach is still getting very distended. She had a chest/stomach x-ray done and her pulm. is concerned about her stomach and wants us to see the GI doc. Right in the...

I took my daughter to clinic last night and overall she's doing pretty well. She gained 3 lbs. since January clinic, YEAH!!! Her stomach is still getting very distended. She had a chest/stomach x-ray done and her pulm. is concerned about her stomach and wants us to see the GI doc. Right in...

Just wondering if anyone here goes to the Alaska clinic for care and what you think of it? Thanks, Misty

Just wondering if anyone here goes to the Alaska clinic for care and what you think of it?

I'm wondering if anyone lives around Woodland Park, CO? Does the high elevation bother the CF patient? Is it hard for them to breath? Thanks, Misty

I'm wondering if anyone lives around Woodland Park, CO? Does the high elevation bother the CF patient? Is it hard for them to breath? Thanks, Misty